Hearts 4 Arch
Mobile monitors for heart kids
In memory of my little brother, Archie
My name is Mimi & together with my parents we’ve started the Hearts 4 Arch not for profit, aiming to provide the cardiac patients across Sydney Children's Hospitals Network with AliveCor’s mobile ECG devices called KardiaMobile. This device will provide the amazing doctors with personal, current and accurate information about their patients to assist them to provide care for children with congenital heart defects. I hope that having this device will give the doctors, the children and their families knowledge that allows everyone to be confident in the repaired heart’s health.
My Brother, Archie
Archie was born with a heart defect known as double outlet right ventricle as well as a hole in his heart (VSD). Our little man pushed through 3 major heart surgeries when he was born, this was when he decided to continue to live the amazing life that was given to him. Archie coming into this world was the best thing that ever happened to me. He taught me everything I know as we grew up together side by side.
Archie was a heart kid.
He was cheeky, funny and the biggest daredevil I knew, many others would say the same. On the weekend you would find him at the beach either jumping off a cliff, surfing with his mates or riding his dirt bike if there weren't any waves.
I hope with the funding from this charity other heart kids will be able to live their life like Arch did, without doubt or hesitation.
On the 29th of December 2019 Archie had a sudden Cardiac arrest while he was down at the beach with his mates. The support he got on that day, allowed me and my family to have the most beautiful goodbye to our best mate on the 3rd of January 2020.
Arch had no reason not to feel confident in his heart’s ability however very rarely he would comment that his heart felt ‘weird’. Because he had annual check ups with his cardiologist which showed his heart was healthy and functioning well, there was no reason for concern. Having the KardiaMobile device would have meant when Archie said his heart felt ‘weird’ we could monitor his heart rate, the information would be sent directly to his cardiologist and if there was any reason for concern we could act on it giving everyone just a little more confidence that his amazing reconfigured heart was ok.
I miss Archie like crazy but I know that he is so proud of his family and mates while we all go through this loss together. Giving anything to this beautiful cause would mean so much to me along with Arch and everyone who was affected by his loss.
Thank you, Mimi Perkin